This is an unofficial report, so I’ll drop the act.

C and I are somewhat frustrated by assessing B’s progress at the moment.  He has to take so many feedings without a tube within a day, then they will give him 2-3 days after that to come home.  We keep thinking we are at that point, then nurses will tell us we are pretty much there, but then a different nurse will contradict what was stated.  The problem with being in such a large institution with nursing teams is that we are having difficulty assessing B’s overall progress and when he will be coming home.  Today, we though he might be home as early as Monday (6/13), and we had been rushed to do some infant CPR, watch some educational videos, read some literature, and push to do a bottle feed or two.  Then right at shift change, our departing nurse said he would need to do a tube feeding, which would reset the 2-3 day clock.  THEN the evening nurse asked us if we wanted to breastfeed or bottle for his next feed (not tube), when the previous nurse made it sound certain we needed to tube him.

So when is B coming home?  We don’t know.  We guess next week… sometime.  In the midst of all this, I’m trying to juggle a work schedule and putting in as much time as I can, but also needing to be at the hospital as much as possible.  Since C can’t leave the hospital now at all, this makes logistics like feeding cats, etc. even more touch and go.